12 – 14 June 2019

Dynamic Earth, Edinburgh

Session type:
Case Study

Session duration:
45 minutes

Presented by:

Vanessa Barone

Sage Bionetworks

Woody MacDuffie

Sage Bionetworks

About this Case Study

In these uncertain times of data breaches and negligent data handling, users are becoming more wary of handing over their data to just anyone. Can privacy policies be designed to be transparent, informative and understandable while applying the appropriate amount of friction?

In this case study, we will walk through a variety of scenarios of differing privacy risks, lessons learned and techniques/tools that can improve transparency and support the autonomous decision-making of users.

About the Speakers

Vanessa Barone

Vanessa Barone is a Seattle-based research scientist with a passion for outreach and engagement to under-served communities. Her work is focused on the use of mobile health applications to empower people to participate in research in a way that aligns with their values, provides meaningful insights into their health and allows participants to partner with scientists to move the biomedical field forward.

Woody MacDuffie

Woody MacDuffie is a Seattle-based designer specialising in designing for health. He is currently, the Head of Design at Sage Bionetworks, where he helped design several award-winning research apps for Samsung and UCSF (2018 Innovation by Design in Health) and Celgene (2018 IXDA honorable mention).


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